Yesterday, Justin and I had a 12 hour trip total to Atlanta.
We had an MRI scheduled for 5:30 pm at Scottish Rite Children's Hospital (Check-in at 4:30) so they could look to confirm that Baby does have Duodenal Atresia...and also check for any other abnormalities.
Our trip started around 11 am. We left the house, headed over to my Mom's house to pick up some things to take to my step-dad. They came home this weekend to rest, regroup and start again. My Mom went back to work since she carries the insurance and will need some time off for me and Baby and Toby went back to Atlanta to stay on Sunday morning. He left all his clothes that Mom had washed (silly men! They don't think they need clean clothes.) so Justin and I stopped in to grab them so we could bring them to him. We had lunch at the Pizza Place in my hometown and headed on up to Atlanta. We arrived at the Shepherd Center to see Camryn around 3 so it was a pretty long trip up. We visited with them for about an hour. I am very glad I got to go see him. He's making progress, slow but steady and they have a ranking scale they use that says he's one point away from being in a semi-conscious state. (yay, Cam!) Each day he's able to do more than the previous day at therapy and it is so great to see and hear about the progress he's making. So, after our brief visit with him, we headed on over to the Children's hospital to get checked in and all. At around 5:30 they took me back to get me in the ugly hospital gown and talk to me about the procedure.
Let me just say, I hope I never, ever, ever have to have another MRI as long as I live. It was fine at first but about 10 minutes in, I literally had a panic attack. If they had not let Justin sit with me, I'm not sure what I would have done because my arms were all crossed over my chest and I was in a sheet like a burrito and I freaked OUT!!!!! I felt like I couldn't breathe. The baby was kicking. So, the tech stopped and I was able to put my hands up above my head and that felt so much better. I felt like I didn't have a huge brick on my chest anymore. Justin held my hands the rest of the procedure which was way better than the first half. I was so uncomfortable and my back was hurting very bad from the pressure of the baby and laying on the hard little gurney thing, (My back is still killing me today!) but I didn't feel so constricted and I could breath. Justin has no idea how much he helped me make it through those last few minutes in that machine.
When I sat up, I was so dizzy. It took several minutes for me to feel normal. I assume, because they had me flat on my back for so long. They took me back to the room to get my clothes on and sent me on my way. The tech did say when she first started the machine, she got a picture of Baby with it's hands up over it's ears like it was trying to block out the sound. She said it made her feel bad. So we got out of the hospital around 7 and headed back home. We stopped for dinner and ended up pulling in the driveway around 11 pm. Whew! What a day!
Today, I talked to the geneticist at my MFM office and she said they already had the results and it does confirm what Dr. H suspected, that it is in fact, Duodenal Atresia...but on the bright side...they don't see any other abnormalities. We have an appointment on December 11th with a pediatric surgeon in Atlanta for a consultation and will probably be meeting with someone at the Maternal Fetal Specialists office too if they can arrange to meet us the same day, we're just waiting to hear from them. The definite plan is to deliver at Northside Hospital in Atlanta, we just need to meet with a team to determine the logistics.
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